My heart is breaking this morning to find out that Kylie "Bug" Taylor earned her wings last night. It really came as a big surprise. Although very sick for many months, and in the cardiovascular intensive care unit at Primary Children's Medical Center for some seven+ months, she had been SO strong. Only true fighters manage to make forts with boxes, bake things in the Easy Bake Oven that they got for Christmas and play 'Guinea Pig Haircuts' while on 17litres High Flow Oxygen! Kylie was in the minority who die while waiting for transplants as children, but there should be NO minority. There ARE enough organs, but in FAR too many cases ignorance prevents the transplant from happening. In Kylie's case there was also a medical error that sent her PRA's WAY high, and thus really prevented her from having the transplant.
Kylie was a very special little girl. I honestly think that this is the most upset I have been when someone I have followed on the internet has passed away...perhaps that's because there was always still HOPE, whereas with many cancer patients, there was NO hope left...
Fly high Kylie. No more PICC lines to drive you crazy, no more freezing, no more swelling in your tummy. In Christ, you are completely healed-no more heart failure from your HLHS.
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